prayers needed

am needing some gameboomer prayers big time. not sure if any one remembers 7 yrs ago was asking for prayers for a granddaughter that was diagnosed with severe heart problems and was sent to denver co. well 7 yrs later we are needing them again big time for her. am going to try and do a copy and paste from youngest daughters post off facebook. she has to be in kansas city on tuesday and will be there 2 - 7 days from waht daughter told me. we all knew this day would come but a person is never ready for it. here it is - We are gonna need all the prayers we can get. Things have not been going in Brooklyn’s favor the last few weeks. Had a routine check up with her cardiologist an found out her heart has weakened considerably in the last 8 months. Her heart function was around 40 but has dropped to 25. We will soon b heading to Kansas City for more test an to get the ball rolling to put her on the transplant list. She will b on the list but our goal is to find the right combination of meds that will help her heart improve. So please keep us in your thoughts a prayers as we go thru this hardship. Emotionally physically mentally financially this is gonna be a huge strain on our family. This is the scariest thing we’ve ever had to deal with. Thank you

Your granddaughter and the rest of your family will be in my thoughts and prayers. I am so sorry you all have to go through this.

Positive thoughts and prayers heading towards your granddaughter and all of your family, my10rugrats!

Positive thoughts and prayers heading her way and the rest of the family.

positive thoughts and prayer on the way. i hope she gets better.

Positive thoughts and prayers for her and her family, so sorry.

Prayers and positive thoughts heading her way and the rest of the family.

I'm so very sorry to hear this, my10rugrats and I send my best for your Granddaughter and all the family

My10rugrats my heart goes out to you and your family. Sending healing prayers for your granddaughter. Take care.
Love & Hugs,
Gerry

My10RR ... will keep granddaughter, family & you in my thoughts and prayers

thank you everyone . talked to daughter last night and she said they are going to do some test tuesday when they get to kansas city and will be working on some meds to see if they can get Brooklyn's heart (granddaughter) in better shape with some new meds. at this time they will be working to get her on the transplant list. Brooklyn called me last night and said she was scared that if she had a transplnat that she wouldn't wake up, i told her to think positive thoughts and that she would wake up.. just wish my health was in better shape so i could be with daughter and granddaughter thru all this but my traveling days are over

Sending positive prayers & hope your way for your granddaughter to get better and become stronger ...

Oh my, with everything else going on you sure didn't need this, all my thoughts & prayers are going out to you & your family.

good wishes to you and your family my10

We'll be keeping you and your grand daughter in our thoughts.

TM

Prayers and Positive thoughts on the way.

daughter and granddaughter made it to kansas city with no problems this morning. now comes the testing and not sure what else. Brooklyn
(granddaughter) called me last night for a little while , guess she had problems sleeping the other night but she said its was her wisdom teeth. guess while she is in the hospital there is a oral surgeon there that is going to remove them. she has to be put under to have this done. will keep you posted when i have more to report on. again thank you for all your thoughts and prayers

Thanks for the update, My10

I will be praying for you my10Rugrats , Im so sorry you have you are dealing with a handful..... BUT always remember, The Good Lord will Never leave us .....nor Forsake us !
Lord, bless my family and children. Give them hearts that follow after you.

Deuteronomy 31:6- "Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you."

here is a update from daughter: Quick update: not much to update today. After frustrating morning with admissions we got checked in around 1 an it’s been nonstop drs ever since. I can’t even remember all of them. She has been seen by pulmonary, ob/gyn, lab, transplant cardiologist, several transplant coordinators. She has had X-ray of the chest an mouth, ct-scan of chest, ultrasound of stomach, echo, ekg, [blip] ton of lab. She hasn’t been able eat all day due to waiting for the ultrasound of stomach. So she finally was able to eat an was so excited to have a turkey sandwich. Evening is slowing down. They plan to do the right heart cath tomorrow an the rest of her test will follow. Thanks for all the love an support. We appreciate it more than ever.

Bless her heart! What an exhausting and scary day for an adult, much less a child.

Thank you for letting us know how things are going, my10rugrats.

You are all still in my thoughts and I am still sending my very best

i know ana, even though she is 22 yrs old is amazing on how well she is holding up. i sent daughter a text to see how brooklyn was doing and she said she is handling this all like a champ and was exhausted.this is todays update from daughter. Update: B went for breathing test first thing this morning. Pulmonologist came in an said her lungs are healthy. She has a little fluid on them but that’s to be expected with her heart condition. She then headed down for her heart cath. They tried to go thru her neck but wasn’t able to. There is something blocking that artery. They had to go thru her groin. She handled the procedure very well. The dr said considering everything going on her heart looked pretty good. She then ended up having an ultrasound on her neck to find out what’s going on. We r still waiting for results from heart cath an ultrasound. We have seen a social worker, psychiatrist, pharmacist, and a chaplain. Hoping tomorrow we know what the plan is as far as the transplant goes. Still hoping we can to some med adjustments to improve the function. But we do know that a transplant will happen at some point in her lifetime. We just don’t know if it’s necessary right now or if she’s strong enough to maintain for awhile. Hopefully we know more tomorrow. Will update as soon as we know. Thanks for all the prayers an support.

Thank you so much for the update, my10... I come here every day to see how it's going.

update for today .Update: we should be heading home within the next couple hours. She’s had another busy day. Stress test, labs, pelvic exam, an update on some vaccines. She does have a blood clot in her neck which is why they weren’t able to do her cath thru there yesterday. They said it looks likes it’s been there for awhile an they aren’t concerned about it. They think it will resolve on its own. The transplant team will meet on Tuesday an go over all her test an make a decision. They will choose one of the following: 1) accept- which means she needs a transplant now 2) defer- which means either needs more test or they want to monitor her as outpatient for awhile an see if the med changes help improve her function or 3) decline- which means something red flagged during the test which says she’s couldn’t handle a transplant/ or her heart is strong enough right now that she doesn’t need one right away. From speaking with several of the drs I believe they will chose to defer an monitor her as outpatient for now. They r hopeful that some of the new meds an med changes will help improve her function. This has been a very educational visit to say the least. I have more understanding of her heart condition an function. As soon as I know more I will update again. In the mean time thanks for all the love support an prayers. We will b home later tonight.

Thank you for the update. Continued thoughts and prayers!

Thanks for the update My10RR! Keeping everyone in my thoughts and prayers

THanks for the update My10! I hope whatever they decide, she does well with.

Sending my very best .... such a lot to be considered

Hi My10, sorry to read about your granddaughter. Sending prayers and much love to you all!

Mary

My goodness that's a lot of hospital stuff to go thru at such a young age. I dealt with a lot of docs myself when I was young so I've an idea of what that's like. Hope it all turns out well.

got a update today. the dr made their decision to defer . daughter siad she expected this is what they would do for now. so what they want to do is monitor her closely in the clinic as a outpatient. they are still hopeful that the meds will help improve function. she has to a video visit with one of the surgeons still since he was unable to meet with them while they were up at the hospital in kansas city. will let you know more when i hear more from daughter. thank you everyone for all the thoughts and prayers.

Thanks for the update, my10. Will pray the meds make a difference

Hoping that the meds work for her my10rugrats!

I'm glad it wasn't a decline. It would be good to see if she can build up strength before having such a major surgery. Keeping her in my prayers.

Ana

I hope the medications will improve her function. I will keep her in my thoughts and prayers.

thats what we are hoping too. her neck has been hurting a lot and warm or even a hot rag hasn't helped. daughter said she may have to call up there to see what she can do

Prayers

Still sending my best for her

My best for her for sure.

Prayers heading up. God bless My10.

Still sending prayers and positive thoughts for her and for you.

Here is the lastest update : Today’s visit went great! Her heart rate is down in the lower 90s. We haven’t seen it that low in almost 7 years. The dr was very pleased with how well her body has responded to the new meds. He has given her clearance to get some dental work done. We found a dentist willing to do it. We r beyond blessed with such an amazing team at St. Luke’s. So thankful for all of them. They have been so patient, kind an understanding. They have taken the time at each appointment an test to explain everything to Brooklyn so she understands an feels safe. We go back mid October for another check up an he’s hoping her heart function will have improved even more. 💞💞

Great news my10rugrats!

That sounds really good my10.

Really pleased to hear that good news, my10rugrats

That is wonderful news.

Great news

That is wonderful news!

Wonderful news.

Sounds like your family have some wonderful doctors. Sometimes, that's half the battle. Prayers for continued health!

that is good news.

Great news, My10!

·this is a update from today.
So just quick update. Thanks to the amazing drs in Kansas City. We finally found an oral surgeon to take Brooklyn’s wisdom teeth out. Dr Harris out of Wichita was willing to help us out. So today Brooklyn had all 4 wisdom teeth out an an extra tooth that was under her tongue. Surgery went great. She’s awake an just wanting to curl up in her bed. She’s gonna be sore for few days but it will all be worth it in the end. Continued prayers are always welcome. Thank u to everyone who has been supportive thru these trying times for Brooklyn.

Oh, what excellent news!

thank goodness for awesome doctors
Sounds like you have a brave granddaughter; good for her

That is great news!!

Very good news about your granddaughter - thanks for letting us know.

Thanks for the good news.

Great news!

I remember and I will Be there again and again and whenever you need me Prayers To you All ,
“‘“The Lord bless you and keep you; the Lord make his face shine on you and be gracious to you; the Lord turn his face toward you
and give you peace.”’

SUCH a brave young lady !!

And I'm continuing to send my best to you all